Blogging Through the Fog…
My doctor has me trying a new medication for my narcolepsy and these last few days my mind has been a bit foggy. Having a chronic neurological disorder sucks in a big way and can really put the damper on one’s life dreams.
I got in trouble with someone on a support forum the other day for posting this: “I doubt there’s anyone with narcolepsy who is completely thrilled with how their life has turned out. Mine has really been a struggle. But I’ve learned so much about myself and gained so much compassion for others through all the problems. I guess if you believe that this life is all there is and that making money and having an impressive career are what counts, then I understand how you could feel bad.
“But if you live and learn and keep putting your feet one in front of the other – there’s a lot to be proud of. No shame in having an illness! If your friends don’t understand, are they really your friends?”
Oops. Apparently there are those who really do think like that! How bad would life seem if you feel horrible 90 percent of the time, and believe that this life is all there is? My point was that I, personally, couldn’t make it without faith in something more. What would be the point in even trying to get out of bed, or even hoping that the next round of medications might work? I know that everyone is into “living in the moment” and “the power of now” and such, and I agree to a point. But when the “now” is the worst thing ever I need hope and trust that there is a bigger picture, and that things will work out OK in the eternal scheme of things.